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Posted on Oct 29, 2013 in Devotional | 8 comments



Perfect little arms and legs, a sweet little belly button, fingers that can pick up anything, and a fluffy little head – things that delight me every day as I look at my daughter. Her legs and ankles are getting stronger, allowing her to walk around objects as long as she holds on. Her two little teeth flash when her face lights up in a smile. Her eyes have turned brown and she has thick, light brown eyelashes. She kisses me with her mouth wide open, often getting in a little lick. I cherish the grossness of her sloppy kisses.

She has a good appetite and eats just about anything I give her. She stopped eating baby food months ago, preferring whatever we’re eating instead. She eats with gusto, shoving little bits of food in her mouth, somehow chewing it up, and making happy noises when new flavors are experienced. But when she’s full, she turns her little head and holds up her hand. That’s it. No more. No apologies to the chef, no concern that there’s still food on her plate. I’m amazed by how her perfect little body works, letting her know when she’s full and making no allowance for gluttony.

Yes, I’m calling my child perfect. Absolutely perfect.

I make no apologies for it. She is an amazing mystery I will never comprehend – how she grew inside me, gained weight and formed beautifully all while I vomited and vomited and vomited. While I laid on the couch and wanted to die, she grew. And then she was out and an entirely separate person, and I was FREE! It’s all too weird to understand.

A childhood friend of mine was also growing a child in her womb while my Eliana was forming in mine. My friend was also doing all she could to nurture new life, to pray for her unborn daughter, and to stand in amazement at the things that were happening to her.

But while I was planning a nursery, she was planning a funeral.

While I was greedily soaking up the perfect little spine I saw on the ultrasound, she was hearing words like “Truncus Arteriosus, Atrial Septal Defect, Cleft lip/palate, and Cystic Kidneys.” Her precious daughter, Abbie Ann, was not perfect. She had Trisomy 13 Syndrome, a genetic disorder that caused her to never get to see the face of her loving parents. They lost her before she was ready to be born.

My friend posted regular updates on Facebook, asking us all to pray for a miracle as she and her husband gave their child every chance to live. I prayed, begging God to heal her daughter, begging God to give her peace. I felt so selfish and small, clinging to the amazing news that my own miracle was healthy and whole. While she dealt gracefully with horrific news, I sobbed in frustration that I couldn’t stop throwing up, wondering if I’d ever feel normal again.

I made a decision. Abbie Ann would never be forgotten by me. Her short life would not go without meaning.

When I look at my daughter, I often think of Abbie Ann. Eliana has a body that works exactly as it should, a mind that is sharp and alert, and a personality that charms. When she was born, I didn’t hope to see unusual beauty, a particular feature, or a color of hair. I hoped for health and wholeness. I was told she was beautiful. I didn’t see it. She was simply my healthy, whole daughter, free from disease, free from pain.

Some day this perfect girl will look in the mirror, and because she is human she will somehow be disappointed by what she sees. She will tell me she wishes she had a different-looking (fill-in-the-blank). And I will smile and tell her she’s perfect. When she rolls her eyes at me (you know she will), I will tell her the story of Abbie Ann. I will tell her how much Abbie Ann’s mommy wishes she could hear her say something so frivolous as her nose is too big (or whatever). I want her to look in the mirror and see wonder – breath-taking, glorious health. Perfection.

I’m not encouraging vanity. It’s the opposite, really. I’m encouraging her to think beyond the pettiness of concern with having just the right face or body or hair to fit in with today’s ever-changing standards of beauty. I’m encouraging her to live in the skin she was given, to behold the wonder of a body that works exactly as it should, and to give thanks to God for the miracle of life.

If our bodies function normally, shouldn’t we all throw up our arms in thanksgiving to God for the gift of perfection? Shouldn’t we praise and sing in wonder and joy?

It’s one of the greatest gifts I can think to give my daughter. I won’t be the mother who encourages vanity. I’ll be the one who reminds her of the great gift of health and wholeness, perfection, she has received. She’ll be hearing me encourage her to go out and make the most of this precious gift.

Psalm 139:13-16a NKJV

For You formed my inward parts;
You covered me in my mother’s womb.
I will praise You, for I am fearfully and wonderfully made;
Marvelous are Your works,
And that my soul knows very well.
My frame was not hidden from You,
When I was made in secret,
And skillfully wrought in the lowest parts of the earth.
Your eyes saw my substance, being yet unformed.

My friend, Maribeth Johnson, has been a pillar of godliness and grace through her difficult loss. She has allowed God to minister to others through her personal tragedy, and she is pressing forward into all God has given her to do. Again, we are expecting new babies around the same time. This time she has heard the beautiful, priceless words – healthy and whole – from the doctors regarding this new life. I rejoice with her and thank God for second chances. She is an extremely talented singer and is about to release a new album. I encourage you to like her page on Facebook and support her when the new album is released. You can find her at

Photo Credit: Bliss Photography,


  1. Beautiful! Thought provoking… A truth-filled perspective. My heart is delighted to hear that Abbie Ann will have a healthy and whole little brother or sister soon.

    • I’m delighted for them too, Shannan. They have a beautiful 2-year old son that they waited a long time for as well. Maribeth is a testimony to God’s grace in so many ways. I wish I could list them all! She was a finalist to be on The Biggest Loser. She didn’t make it on the show, but she took the challenge and lost a bunch of weight on her own. She even ran a half-marathon! And just wait til you hear her sing… 🙂 I pray that others will hear the truth of her message and how it’s changed my perspective on so many things.

  2. I sit here with tears in my eyes as I read this beautiful post. I think of your baby girl doubting herself and hearing your friend’s story and I pray she receives the truth in it.

    • Thank you, Pamela. It brings tears to my eyes to think of her doubting herself, but we all know it will happen some day. I pray she receives the truth as well. I pray I can somehow live a life that daily reflects this truth so it seeps deep into who she is and who I am as well.

  3. Thank you for your beautiful words about our daughter-in-law, Maribeth and our precious granddaughter, Abbie Ann. We have seen God’s hand in every moment of this situation. You’re completely right that Abbie did not live in vain. Her story will live on and minister to many. We will love and miss her until that day when we can hold her in our arms.

    • Gary, my heart goes out to your entire family. The loss goes so much further than just Maribeth and Jeremy. Thank you for taking the time to read and comment on this post.

  4. I also sit here with tears in my eyes as I read about Maribeth’s loss. I also lost my beautiful daughter, Sabrina Lynn, over 30 years ago at only 4 days old. She weighed 10 lbs and was 22 inches long, but there was a problem with the birth, and she was taken from us. God did bless us with another child 10 months after we lost her; but, the hurt and pain has never left my heart!

    I am so grateful for your beautiful little girl, Eliana, and I thank you for sharing your words of wisdom in so many things! I think of you often, Kim, and I am so happy for the love in your life!

    • Oh Barbara, I had no idea about your loss. I’m sure that the pain remains even with the passing of time. Thank you for sharing your story. Thank you for keeping up with me too.

If we were chatting over a cup of coffee, what would you tell me?

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